I live in Detroit Michigan and have Lupus. While preparing to take my Girl Scout Troop to sell candy, my knee started to hurt. I stopped at the store and bought some icy hot to rub on my knee and elevated my leg overnight. The next day I couldn't put any weight on my leg. A friend took me to Henry Ford Hospital emergency. All I remember after entering the emergency room was signing some papers. I woke up seven days later. The doctor had instructions not to tell me what had happed until my family was present; however I started asking a lot of questions and wanted to know why my hands were tied to the bed. The doctor had to tell me what had happened. He said "We had to amputate your left limb." I said "stop playing doc, just give me a shot of something and let me be on my way." "I'm not playing" said the doctor. I felt over to where I could still feel the present of my limb, then looked down and didn't see my limb! I screamed and cried so loud that they had to sedate me. I can't explain how I felt. I went into the hospital with two legs and came out with one. I though I was dreaming and couldn't wake up. I still can't believe it. I spent two and a half weeks at Henry Ford Hospital and two weeks at the Rehabilitation Institute of Michigan. I had to undergo two skin grafts and could see my insides where they had taken my limb right out of its socket. I had never heard of NF before and didn't have any of the symptoms. I have no idea how I got NF. The doctor's seem to think that because my immune system is low from the lupus, I contracted something that my body couldn't fight off. My form of amputation is called "Hip Disarticulation" and I don't have a stump. My prosthetic fits around my waist with the leg attached in the front. I'm in PT three times a week. Learning to walk all over again is not easy, but I can't give up. My life has been turned upside down and I'm learning to adjust to my new way of doing things. I appreciate life and plan on living it to the fullest. The single parent of a ten year old and troop leader to 10 girls ranging in age from 10 - 12 there is no time for sitting still. They keep me busy, which is therapeutic in its own way. I look forward to living.