Janine Diederiks

My name is Janine Diederiks and I am 41 years old from Johannesburg, South Africa. It has been two years since I survived NF. On the 29th of October 2009, I went for a hysterectomy, and expected to be back at work in less than four weeks. But this did not happen…The day after the operation, I felt something was not right as I was excessively swollen and my stomach was hard and the color also did not look right. I raised my concerns with my gynecologist, but – without even looking at the wound, he assured me that it was normal. I was discharged two days later and was still very worried. A week after the operation was done, I had to go back to the gynecologist to have the stitches removed and raised my concern again, but was re-assured again that it was normal. I was given a mild anti-biotic, as I am allergic to penicillin, and was send home. The next afternoon as I was sleeping, which was all I did, as I felt very sick, the wound opened up and fluid was literally pouring from it. I was rushed to hospital and was immediately pushed into theatre. By the time I started to came out of my medicine induced coma, it was two weeks later. I was quite shocked at the amount of people around my bed saying their last good-buys. As I was on life-support, and ventilated, there was no way in telling them that I was back. I was later on told that I had Renal failure, Pulmonary embolism, septic shock, five emergency operations and eventually heart failure, all caused by NF. I was discharged from hospital a month later after I had to go through numerous dialysis, physiotherapy and psychology sessions. The wounds have now been healed, but I was left with hypertension, hypoglycemia, incisional hernias as well as allot of emotional scarring.