Justin Sharphead

My 8 year old son, Justin, who also has Ehlers Danlos syndrome, contracted the flesh eating bacteria from a bump on a pull out sofa bed. No cut, no scratch, nothing. This bacteria is baffling. He did have flu like symptoms and did develop a reddened swollen area where the initial bump was. He was hospitalized from March 16th to April 13th. He lost a lot of skin on his shin but his outlook is good. I am grateful for this website and the stories during his time in the hospital. It offered hope and comfort to know that there can be a positive outcome and yes, we were scared to death but to know of survivors of this Strep A helped a lot. We really never knew about this disease until it struck close to our home. The website has touched our hearts and each story needs to be heard.